In 2008, promising young Irish director Simon Fitzmaurice was diagnosed with motor neurone disease (ALS). At just 34 years old, he was given four years to live. Reeling from the shock, Fitzmaurice realised that his greatest defiance of ALS would be to direct his first feature film. Seven years later, despite total physical incapacitation, Fitzmaurice completed My Name is Emily (2015), directing it only with the use of his eyes. This emotional journey of self-realisation and personal triumph over life-crushing adversity is nothing short of inspiring. Captured with intimate home movies, photographs and an affectionate voice-over by compatriot Colin Farrell, it transports us into Fitzmaurice’s creative world where every physical and psychological challenge is met with positivity and the desire to fulfill a dream.
Official selection 2017 Sundance Film Festival
Winner – Best Feature documentary – 28th Galway Film Fleadh
Winner – Best Cinematography in an Irish Feature - 28th Galway Film Fleadh
« A crowd-pleasing message of the triumph of will and art over physical adversity » Screen International
« A powerful call to live in the moment… an illuminating experience » IndieWire
« …incredibly powerful… Fenton has a strong poetic eye » Rogerebert.com
Specially dedicated to Simon Fitzmaurice who died in October 2017, the evening will begin with the screening of his short film The Sound of People which premiered in 2007.
The Sound of People (2007, VO).